Addressing Underdiagnosis; Search & Rescue Australia Thank you to data compiled and published through the National Disability Insurance Scheme (NDIS) we have been able to
The Global Angelman Syndrome Registry; updates This is a project the Australian community should be incredibly proud of, designed for individuals diagnosed with Angelman
Aligning with our goal of providing access to best practices in care and treatments for all Australians living with AS. Three FAST funded clinical nurse coordinators are working in existing clinics, boosting previous capacity. Currently, efforts are underway to foster collaboration among nurses across all sites, forming a cohesive network.
Estimating the impact of Angelman syndrome on parental productivity in Australia using productivity-adjusted life years.
