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Most People Have Never Heard of Angelman Syndrome

Scientists believe it has great potential for being cured.

About Angelman Syndrome

Angelman syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people – about 500,000 individuals worldwide. Symptoms include, but are not limited to: delayed developmental milestones; gross and fine motor impairment; difficulty with feeding and swallowing; issues; loss of functional speech and epilepsy.

There is hope for treatments 

Angelman syndrome has been reversed multiple ways in mice, clincal trials are recruiting, and the progress scientists are making is thrilling.

Australian
Clinical Trials

There are currently three clinical trials recruiting in Australia at Melbourne, Sydney and Brisbane sites.
For more information visit
Australian Clinical Trials

You are not alone

Parents of children with Angelman Syndrome, who know what a diagnosis like this is like, are standing by to answer your questions and assist you.

About the Foundation

FAST has a vision of a world where lives are no longer limited by a diagnosis of Angelman syndrome.

The mission of the Foundation for Angelman Syndrome Therapeutics Australia is to improve the quality of life for individuals with Angelman syndrome through timely diagnosis, access to best practices in care and treatments, and advancing research for a cure.

Founded in the United States, Australia is just one of the Global affiliates advancing Angelman syndrome research and clinical trials.  FAST also has affiliates in Canada, France, Italy, Latin America (Argentina, Chile, Colombia), Spain and the UK.

Get Involved

 

Join our annual fundraising campaign, Cure Angelman Now!

As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help!

Colin Farrell

Actor

“Anything anyone can do to raise awareness is greatly appreciated. No gesture too small. No such thing as the insignificant word or deed.”

Art Beaudet

Professor

“Angelman syndrome holds one of the single most optimistic possibilities for a cure.”

David Segal

Professor

“It was the science that brought me into this, but it was the community that made me want to stay.”