The Global Angelman Syndrome Registry is an Australian initiative, designed ultimately to benefit individuals diagnosed with Angelman syndrome and those working to create a new future.The Registry is a tool for cataloguing symptoms and medications and plotting the developmental trajectories in Angelman syndrome and provides an invaluable resource to anyone interested in advancing understanding, research or clinical trials. The Registry provides the perfect mechanism to analyse, recruit and measure the effectiveness of interventions.
Join our annual fundraising campaign, Cure Angelman Now!
As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help!