asNavigators is a clinical support network supported by FAST Australia. Our goal is to ensure that every individual with Angelman syndrome receives consistent, high-quality care, regardless of their location.

The first Angelman Syndrome Clinic opened in Sydney in October 1993 and successfully operated for many years, thanks to the dedication and expertise of Dr. Robert Leitner (Developmental Paediatrician) and Dr. Ellie Smith (Consultant Cytogeneticist), with the support of the Angelman Syndrome Association Australia.

Building on this foundation, the Angelman Clinical Network was established. Today, asNavigators, or Angelman Syndrome Clinical Nurse Coordinators, are placed in clinics in Melbourne and Brisbane, thanks to funding provided by the Foundation for Angelman Syndrome Therapeutics Australia. These clinics serve families with Angelman syndrome and healthcare providers seeking to support patients with the condition.

ASNavigators work alongside local healthcare teams, providing guidance from leading Australian clinicians to help families navigate medical care, treatment options, and emergency situations. By improving access to specialized support, we aim to reduce unnecessary hospital visits and enhance the overall quality of life for those living with Angelman syndrome.

You can visit the asNavigators website here.

FAST has committed to funding this project as a two-year pilot program. However, continued funding is vital to keep this initiative running beyond this period.

Please consider making a donation to support this critical program and ensure its long-term success.