A new diagnosis of Angelman Syndrome can be an extremely stressful and uncertain time for families. We answer the above phone line at all reasonable hours of the day and night and are happy to talk with you about the research into Angelman syndrome as well as our lived experiences as Angelman parents. We can also connect you with others who might be in similar situations – you do not have to do this alone. If you, or someone you know, need to speak with someone please contact Beyond Blue.
In consultation with the Australian Angelman Syndrome community, this page will be constantly evolving. If you have a suggestion of what you would like to see here please email us.
There is a fantastic community of people who are dealing with Angelman Syndrome either as a family member, as a teacher or caregiver, or as a friend.
There are numerous ways to link into the community and get involved. Make sure you subscribe to FAST at the top of this page to stay up to date with fantastic events happening across Australia. Connect to social media using the icons at the top right of this page.