Why we fundraise
FAST Australia have three key priorities during the 23/24 financial year;
- Continue to build on and expand our contribution to research with our Global Angelman Syndrome Registry.
- a two year pilot of an Angelman Syndrome Clinic network, consisting of three Clinical Nurse Coordinators at multidisciplinary clinics in Melbourne, Sydney and Brisbane. The aim of this network is to support families and local caregivers navigating all aspects Angelman syndrome, and
- to develop a project to address the underdiagnosis of Angelman syndrome in Australia
We all also actively pursue research partnerships and any opportunity to develop or participate in initatives that align with our goals.