G'Day
Whether this is your first time on our site or you’re returning for more information, know that you are not alone - here in Australia or globally. For families impacted by Angelman syndrome, community can be a lifeline. The Angelman community will support you through the difficult times and celebrate your hard-earned wins. I always say, "this is the best club you never wanted to be part of" -but we’re working every day to change that. Our mission is to accelerate research, drive clinical progress, and push for treatments that will transform the future of Angelman syndrome. While you’re here, know that you’re not alone, and together, we’re working toward a day when no family has to join this club.
While you are here, we will stand with you to give you the strength to envision a different future. The strength to navigate the complexities of science that can feel like learning a new language. The strength to take on even more in days already filled with therapy sessions, NDIS forms, medical appointments, school meetings, and the endless logistics of daily life. You are not alone—we are with you every step of the way.
Angelman syndrome is a journey—one filled with incredible highs and tough challenges. When we first received our diagnosis, one of the things that resonated with me the most was something another mum, now a lifelong friend, said: "The hole in your heart will always be there. Some days, it will feel raw. Most days, you won’t feel it at all."
At FAST, we share an unshakable belief that the future can and will be better - and that we have a role in making it happen. We’re working toward a world where a diagnosis of Angelman syndrome doesn’t set limits on what’s possible. What once felt out of reach is now closer than ever.
Your next step starts here.
Meagan Cross
FAST Australia, co-founder and CEO
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