G'Day

Whether this is your first time on our site or you’re returning for more information, know that you are not alone, here in Australia or globally. For families impacted by Angelman syndrome, community can be a lifeline. The Angelman community will support you through the difficult times and celebrate your hard-earned wins.

I always say, “this is the best club you never wanted to be part of”, but we’re working every day to change that.

At FAST, our role is to walk alongside families while also driving the work that changes what’s possible.

Our mission is to accelerate research, drive clinical progress, and push for treatments that will transform the future of Angelman syndrome.

That means supporting the systems around families today through our nurse-led asNavigators program, trusted information, and community connection, while also building the data, research partnerships and trial readiness needed for tomorrow’s therapies. While you’re here, know that you’re not alone, and together, we’re working toward a day when no family has to join this club.

While you are here, we will stand with you to give you the strength to envision a different future. The strength to navigate the complexities of science that can feel like learning a new language. The strength that comes from having someone help you make sense of clinical trials, research updates, and what they might mean for your child, without needing to become a scientist overnight.

The strength to take on even more in days already filled with therapy sessions, NDIS forms, medical appointments, school meetings, and the endless logistics of daily life. Through our clinical nurse network and practical tools, we help families navigate care, connect with clinicians, and feel less alone in the process. You are not alone. We are with you every step of the way.

Angelman syndrome is a journey, one filled with incredible highs and tough challenges. When we first received our diagnosis, one of the things that resonated with me the most was something another mum, now a lifelong friend, said, “The hole in your heart will always be there. Some days, it will feel raw. Most days, you won’t feel it at all.”

At FAST, we share an unshakable belief that the future can and will be better, and that we have a role in making it happen. By supporting families today, strengthening care pathways, and accelerating the research that leads to real treatments, we’re working toward a world where a diagnosis of Angelman syndrome doesn’t set limits on what’s possible. What once felt out of reach is now closer than ever.

Your next step starts here.

Meagan Cross

FAST Australia, co-founder and CEO