Addressing Underdiagnosis; Search & Rescue Australia Thank you to data compiled and published through the National Disability Insurance Scheme (NDIS)
The Global Angelman Syndrome Registry; updates  This is a project the Australian community should be incredibly proud of, designed
Aligning with our goal of providing access to best practices in care and treatments for all Australians living with AS. Three FAST funded clinical nurse coordinators are working in existing clinics, boosting previous capacity. Currently, efforts are underway to foster collaboration among nurses across all sites, forming a cohesive network.
Estimating the impact of Angelman syndrome on parental productivity in Australia using productivity-adjusted life years.
Now recruiting in Melbourne, Sydney and Brisbane. Further details are at angelmanstudy.com.au/ & clinicaltrials.gov/
This study is investigating the gut microbiome in children and young people. with Angelman Syndrome. If you have a child with Angelman’s Syndrome aged between 4-18yrs, live in Australia and are interested in participating please contact Study Coordinator, Ellen Taylor at ellen.taylor@health.qld.gov.au