NEWS FEED

COVID-19

COVID-19

COVID-19 can be extra stressful for anyone with a family member with Angelman syndrome. We have compiled some information with expert advice that we will keep up to date as regularly as possible.

NEPTUNE clinical trial screening now

NEPTUNE clinical trial screening now

Two sites are open in Brisbane and Melbourne. Due to COVID-19 each site has evolving processes of scheduling screening visits, so it is important to be in direct contact with the study teams at the site closest to you.

GTX-102 Granted Fast Track Designation by U.S. FDA

GTX-102 Granted Fast Track Designation by U.S. FDA

“Receiving Fast Track designation for GTX-102 is an important recognition of our antisense oligonucleotide program and the promise it might offer to this patient population.” ~ Paula Evans, Chief Executive Officer, GeneTx.

Murdoch Fellowship

Murdoch Fellowship

FAST Australia announces a new two-year Angelman syndrome research fellowship for Dr Emma Baker at the Murdoch Children's Research Institute.

News & Media

News & Media

Australian National Rugby League (NRL) identities Damien Cook, Iosia Soliola, Sam Perrett and Curtis Rona have been using their public profiles to increase awareness into Angelman syndrome.

More media
Enabling Research

Enabling Research

The Global Angelman Syndrome Registry is creating new opportunities, insight and understanding into Angelman syndrome, providing an invaluable tool for facilitating research.

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Raising Awareness

Raising Awareness

This beautiful video is one of a series produced to illustrate common features of Angelman syndrome and highlights individuality amongst those who have been diagnosed.

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About the Foundation

The Foundation for Angelman Syndrome Therapeutics Australia (or FAST Australia) is an organisation of families and professionals dedicated to assisting individuals living with Angelman syndrome to realise their full potential and quality of life through funding research, education and advocacy. Our focus is treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.

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About the Foundation

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Newly diagnosed

Resources to help those new to Angelman syndrome.

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Donate

Support projects progressing Angelman syndrome research.

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Fundraise

Start your own fundraising page to help #CureAngelman.

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Colin Farrell, Actor
"Anything anyone can do to raise awareness is greatly appreciated. No gesture too small. No such thing as the insignificant word or deed."

Colin Farrell, Actor

Professor David Segal
"It was the science that brought me into this, but it was the community that made me want to stay."

Professor David Segal

Professor Art Beaudet
"Angelman syndrome holds one of the single most optimistic possibilities for a cure."

Professor Art Beaudet