Get Involved

Newly Diagnosed

Resources to help those new to Angelman syndrome.

Donate

Support projects progressing Angelman syndrome research.

Fundraise

Start your own fundraising page to help #CureAngelman.

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News & Media

Australian National Rugby League (NRL) identities Damien Cook, Iosia Soliola, Sam Perrett and Curtis Rona have been using their public profiles to increase awareness into Angelman syndrome.

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Enabling Research

The Global Angelman Syndrome Registry is creating new opportunities, insight and understanding into Angelman syndrome, providing an invaluable tool for facilitating research.

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Raising Awareness

This beautiful video is one of a series produced to illustrate common features of Angelman syndrome and highlights individuality amongst those who have been diagnosed.

Neuren Australian Clinical Trial

March 30, 2021

Neuren is a Melbourne-based company at the forefront of efforts to develop effective treatments for rare, paediatric neurodevelopmental disorders, they plan to initiate an Australian clinical trial in Angelman later in 2021. 

Centre of Excellence

February 15, 2021

FAST Australia are committed to funding and establishing an Angelman syndrome Centre of Excellence to deliver a uniform standard of care across Australia and create infrastructure for clinical trials.

Positive Interim Phase 1/2 Data

October 27, 2020

“So far we are seeing rapid improvements in multiple areas, including some kids doing things they’ve never done before, and I don’t believe this rate of progress in development skills has been seen before in Angelman syndrome,” commented Elizabeth M. Berry-Kravis, M.D. investigator in the GTX-102 clinical study.

Angelman Syndrome Biobank

October 6, 2020

If you are a parent of a person with Angelman syndrome in Australia, the Murdoch Children’s Research Institute would like to invite you to participate in the Australian Biobank for Chromosome 15 imprinting disorders.

GTX-102 in Children With Angelman Syndrome (KIK-AS)

August 24, 2020

The first patients have been enrolled in the Genetx (Ultragenyx Pharmaceutical Inc) KIK-AS trial in the United States.

Sleepless in September

August 24, 2020

Fundraise for "Sleepless in September" by committing to a total of 8 hours of sleep between 6am Fri and 6:00 am on Sept 26 - 6am Sept 27th. https://sleeplessinseptember.gofundraise.com.au/

Roche Clinical trial

June 23, 2020

Roche and Genentech (the US member of the Roche group) have recruited the first patient in their Phase 1 clinical trial named "Tangelo" that is targeting AS with an oligonucleotide.

COVID-19

March 18, 2020

COVID-19 can be extra stressful for anyone with a family member with Angelman syndrome. We have compiled some information with expert advice that we will keep up to date as regularly as possible.

NEPTUNE clinical trial screening now

February 2, 2020

Two sites are open in Brisbane and Melbourne. Due to COVID-19 each site has evolving processes of scheduling screening visits, so it is important to be in direct contact with the study teams at the site closest to you.

About the foundation

The Foundation for Angelman Syndrome Therapeutics Australia (or FAST Australia) is an organisation of families and professionals dedicated to assisting individuals living with Angelman syndrome to realise their full potential and quality of life through funding research, education and advocacy. Our focus is treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.

Colin Farrell

Actor

“Anything anyone can do to raise awareness is greatly appreciated. No gesture too small. No such thing as the insignificant word or deed.”

Art Beaudet

Professor

“Angelman syndrome holds one of the single most optimistic possibilities for a cure.”

David Segal

Professor

“It was the science that brought me into this, but it was the community that made me want to stay.”