Get Involved

Newly Diagnosed

Resources to help those new to Angelman syndrome.

Donate

Support projects progressing Angelman syndrome research.

Fundraise

Start your own fundraising page to help #CureAngelman.

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News & Media

Australian National Rugby League (NRL) identities Damien Cook, Iosia Soliola, Sam Perrett and Curtis Rona have been using their public profiles to increase awareness into Angelman syndrome.

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Enabling Research

The Global Angelman Syndrome Registry is creating new opportunities, insight and understanding into Angelman syndrome, providing an invaluable tool for facilitating research.

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Raising Awareness

This beautiful video is one of a series produced to illustrate common features of Angelman syndrome and highlights individuality amongst those who have been diagnosed.

Notes from Vienna ~ a mission for knowledge

January 30, 2023

Angelman grandfather Michael Paech, travelled to Vienna to attend the Angelman Syndrome Alliance Conference and learn more about current research, trials, clinics and what the future might hold for his granddaughter Anna.

2023 Conference

December 8, 2022

The Angelman Syndrome Association Australia and the Foundation for Angelman Syndrome Therapeutics Australia are excited to host our first ever joint conference in Brisbane at the Hotel Grand Chancellor Feb 10-11.

FAST funded paper

December 1, 2022

Estimating the impact of Angelman syndrome on parental productivity in Australia using productivity-adjusted life years.

Australian Clinical Trial

November 10, 2022

Now recruiting in Melbourne, Sydney and Brisbane. Further details are at angelmanstudy.com.au/ & clinicaltrials.gov/

Research opportunity

September 19, 2022

This study is investigating the gut microbiome in children and young people. with Angelman Syndrome. If you have a child with Angelman’s Syndrome aged between 4-18yrs, live in Australia and are interested in participating please contact Study Coordinator, Ellen Taylor at ellen.taylor@health.qld.gov.au

About the foundation

The Foundation for Angelman Syndrome Therapeutics Australia (or FAST Australia) is an organisation of families and professionals dedicated to assisting individuals living with Angelman syndrome to realise their full potential and quality of life through funding research, education and advocacy. Our focus is treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.

Colin Farrell

Actor

“Anything anyone can do to raise awareness is greatly appreciated. No gesture too small. No such thing as the insignificant word or deed.”

Art Beaudet

Professor

“Angelman syndrome holds one of the single most optimistic possibilities for a cure.”

David Segal

Professor

“It was the science that brought me into this, but it was the community that made me want to stay.”