Join our Community
Connect with other people who have a child or loved one with Angelman syndrome
Most People Have Never Heard of Angelman Syndrome
Scientists believe it has great potential for being cured.
Angelman syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people – about 500,000 individuals worldwide. Symptoms include, but are not limited to: delayed developmental milestones; gross and fine motor impairment; difficulty with feeding and swallowing; issues; loss of functional speech and epilepsy.
Angelman syndrome has been cured multiple ways in mice, multiple clincal trials recruiting, and the progress our scientists are making is nothing short of thrilling.
Parents of children with Angelman Syndrome, who know what a diagnosis like this is like, are standing by to answer your questions and assist you.
FAST has a vision of a world where lives are no longer limited by a diagnosis of Angelman syndrome.
The mission of the Foundation for Angelman Syndrome Therapeutics Australia is to improve the quality of life for individuals with Angelman syndrome through timely diagnosis, access to best practices in care and treatments, and advancing research for a cure.
Founded in the United States, Australia is just one of the Global affiliates advancing Angelman syndrome research and clinical trials. FAST also has affiliates in Canada, France, Italy, Latin America (Argentina, Chile, Colombia), Spain and the UK.
The Global Angelman Syndrome Registry is an Australian initiative, designed ultimately to benefit individuals diagnosed with Angelman syndrome and those working to create a new future.The Registry is a tool for cataloguing symptoms and medications and plotting the developmental trajectories in Angelman syndrome and provides an invaluable resource to anyone interested in advancing understanding, research or clinical trials. The Registry provides the perfect mechanism to analyse, recruit and measure the effectiveness of interventions.