If you had a dollar for every time you had to explain Angelman syndrome, no doubt you could fund prestige research labs across the globe. A diagnosis of Angelman syndrome can often be delayed – stories of diagnosis as adults are still common. We suspect a huge number of cases of AS still remain undiagnosed; currently classified as Cerebral Palsy, Autism or unknown intellectual impairment or seizure disorders.
Raising awareness means:
- Medical professionals think of Angelman syndrome when trying to reach a diagnosis
- Families have access to concise information to plan for their future
- Networks with like-minded families can be formed
- Therapists can tailor plans for learning
- Statistics on diagnosis rates are up to date
- The voice of patients and their families with common needs are heard
How you can help raise awareness
- Buy a FAST Ambassador t-shirt! (two styles pictured right) enquire at info@cureangelman.org.au
- Tell someone your story, if you want assistance in contacting the media we have templates and a media liaison officer you can speak with
- Attend local or regional disability events, hold a stall or talk to a crowd about AS, we can provide the support you need and have a pullup banner and brochures for use
- Share the FAST social media pages (links top right) with friends and family
- Hold an International Angelman Day event
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