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G'Day
Whether this is your first time on our site or you’re returning for more information, know that you are not alone, here in Australia or globally. For families impacted by Angelman syndrome, community can be a lifeline. The Angelman community will support you through the difficult times and celebrate your hard-earned wins.
I always say, “this is the best club you never wanted to be part of”, but we’re working every day to change that.
At FAST, our role is to walk alongside families while also driving the work that changes what’s possible.
Our mission is to accelerate research, drive clinical progress, and push for treatments that will transform the future of Angelman syndrome.
Read the full letter here... (MC link to old for families page here)
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About Angelman
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G'Day
Whether this is your first time on our site or you’re returning for more information, know that you are not alone, here in Australia or globally. For families impacted by Angelman syndrome, community can be a lifeline. The Angelman community will support you through the difficult times and celebrate your hard-earned wins.
I often say, “this is the best club you never wanted to be part of”, but we’re working every day to change that.
At FAST, our role is to walk alongside families while also driving the work that changes what’s possible.
Our mission is to accelerate research, drive clinical progress, and push for treatments that will transform the future of Angelman syndrome.
Read the full letter from FAST Australia co-founder, CEO and Angelman mum, Meagan Cross here...
Let’s face it — no one expects to be here.
Receiving a diagnosis of Angelman syndrome often raises more questions than it answers.
Why did this happen? What does this mean for my child? Will they reach milestones? What support is available?
Follow the coloured boxes below at your own pace. Learn more, connect with other families, take part in research, access Angelman syndrome nurse coordinators and clinics, and find ways to get involved.
Understand
Learn what Angelman syndrome (AS) is, how it happens, and how it’s diagnosed. \
We explain the different types of AS in simple terms, and what this might mean for your child and their care.
Read more...
Connect
Sign up to our newsletter, follow us on Facebook & join a closed Facebook page (for Australian parents only). Meet other Australian families who understand what you’re going through, and learn how others manage day-to-day life with Angelman syndrome.
Register
Join global research by adding your child’s information to the Global Angelman Syndrome Registry. This brings together real-life experiences from families to improve understanding of AS and support future treatments and clinical trials.
Navigate
Angelman syndrome (AS) can affect many areas like seizures, sleep, movement and behaviour.
Our nurse-led program, asNavigators, helps connect you with the people who understand AS.
Learn about asNavigators...
Get Involved
Support programs like asNavigators and the Global Angelman Syndrome Registry.
Fundraise, share information, and become a powerful advocate for your child and others living with Angelman syndrome.
Keep in Touch
FAST Australia is an independent Australian Health Promotion Charity and a separate legal entity from FAST United States (cureangelman.org).
Each organisation operates under its own governance and legal obligations.
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