Newly Diagnosed
A new diagnosis of Angelman Syndrome can be an extremely stressful and uncertain time for families. The Angelman family will support you in difficult times and celebrate your hard-earned wins. We share a common vision, that soon there can be a cure for all ages. Share to help raise awareness on the importance of community. International Angelman Day is celebrated annually on February 15.
Diagnosis day brings a flood of questions. Have no fear. You are now part of a network of parents, researchers, clinicians, and other professionals who are committed to Cure Angelman Now. Here you will find a supportive community, answers to each of your questions, and a wealth of resources to help you manage your child’s daily needs.
We answer phone number at the bottom of this page at all reasonable hours of the day and night and are happy to talk with you about the research into Angelman syndrome as well as our lived experiences as Angelman parents.
We can also connect you with others who might be in similar situations – you do not have to do this alone. If you, or someone you know, need to speak with someone please contact Beyond Blue.
There are numerous ways to link into the community and get involved.
Make sure you subscribe to FAST newsletters to stay up to date with fantastic events happening across Australia. Connect to social media using the icons at the bottom right of this page, and apply to join the Australian community closed page for Australian parents only here.