Research & Industry Resources

We’re excited to welcome researchers and industry partners to explore the valuable resources and opportunities available here in Australia. As part of the global effort to advance the understanding and treatment of Angelman Syndrome, we offer access to key initiatives like our Global Angelman Syndrome Registry, a comprehensive database crucial for advancing research and improving care.

Apply to access data or to enquire with one of our data curators at curator@angelmanregistry.info.

In Australia, through our funding of the asNavigators initiative and beyond, we are actively strengthening connections between researchers, clinicians, and the Angelman Syndrome community in Australia. We can facilitate introductions to clinicians with extensive experience in both Angelman Syndrome care and clinical trial management, ensuring high-quality insights and collaboration. Our Chromosome 15 Biobank offers a critical resource for advancing genetic research and therapeutic development, visit the Contact Us page if you want to enquire about accessing biologicals.

Stay connected with our community through our events and conferences, where you can engage with experts, share knowledge, and contribute to the collective goal of improving lives. Our next conference and upcoming events will provide opportunities for networking and collaboration across the field.

As we continue to develop this page, we will soon include a side menu linking to essential US-based resources, including ABOM, Global Summits, Bioresources, Grants, and our Literature Repository to further support your research journey.

Thank you for joining us in the pursuit of a brighter future for our loved ones living with AS.

Together, we can make lasting change.