Privacy Policy

Privacy PolicyUpdated February 2025 Copyright © 2010-2025 Foundation for Angelman Syndrome Therapeutics Australia (FAST)

At the Foundation for Angelman Syndrome Therapeutics Australia (FAST), we respect and protect the privacy of all visitors and users of our website. This Privacy Policy outlines how we collect, use, and protect your information. By using our website, you consent to the practices described in this policy. FAST is the owner of any information collected on its website, and we do not sell, share, or rent your personal information to third parties for their marketing purposes.

Information We Collect

FAST collects personal information to provide better services and support to those interested in Angelman syndrome research and related initiatives. The types of personally identifiable information we may collect include:

• Contact information: name, address, email address, phone number
• Usage data: information about your interests in and use of www.CureAngelman.org.au

Additionally, we may collect non-personally identifiable information such as IP addresses, browser type, and operating system, primarily for site administration, demographic analysis, and enhancing the user experience.

How We Use Your Information

We use the information you provide for the following purposes:

• To respond to your enquiries and requests
• To inform you about our programmes, services, and updates related to Angelman syndrome
• To improve the content and functionality of our website
• To fulfil your subscription to our online newsletter or other communication channels

Your information may also be used for aggregate data analysis and research to improve FAST’s initiatives.

Data Security

We take reasonable and appropriate security measures to protect the personal data you provide from unauthorised access, alteration, or disclosure. Your personal information is stored in a database accessible only to authorised personnel via a double password-protected system. Access to this database is restricted to specific IP addresses.

However, while we take steps to safeguard your information, we cannot guarantee the absolute security of personal data, and by using this website, you acknowledge that there is always a risk of unauthorised access.

Data Retention and User Rights

FAST retains your personal data for as long as necessary to fulfil the purposes outlined in this Privacy Policy, or as required by law.

Under data protection laws, you may have rights regarding the personal data we hold about you. These include:

• The right to access your data
• The right to request correction of inaccurate data
• The right to request deletion or erasure of your data
• The right to withdraw consent (if data processing is based on consent)
• The right to object to data processing (under certain conditions)

To exercise any of these rights, please contact us at info@cureangelman.org.au. We will respond to your request in accordance with applicable laws.

Disclosure of Information

FAST may disclose the information we collect when required by law, such as in response to a court order, subpoena, or request from law enforcement agencies. We may also disclose information if we believe it is necessary to protect our rights or to prevent harm.

Third-Party Links

Our website may contain links to third-party websites. These external sites are not controlled by FAST, and we are not responsible for their privacy practices. We encourage you to review the privacy policies of any external sites you visit through links provided on our website.

Cookies and Tracking Technologies

We use cookies and similar technologies (such as web beacons and pixels) to enhance your experience on our website. These technologies help us:

• Understand how you interact with the website
• Improvethe website’s functionality and user experience
• Provide you with personalised content and services

By continuing to use our website, you consent to our use of cookies. You can adjust your browser settings to block cookies or alert you when cookies are being sent. However, please note that some website features may not function properly if cookies are disabled.

Changes to This Privacy Policy

FAST may update this Privacy Policy from time to time. When we do, we will post the revised policy on this page with an updated "Effective Date." We encourage you to review this Privacy Policy periodically to stay informed about how we are protecting your information.

Global Angelman Syndrome Registry Project

Please note that there is a specific Privacy Policy related to this project, which can be found on the Global Angelman Syndrome Registry Website. FAST Australia does not have access to any personally identifiable (PII) information in this project. Additional details, including information about our EU representative and Data Protection Officer for this project, can also be found at the aforementioned link.

Contact Us

If you have any questions or concerns about our Privacy Policy or how we handle your personal data, please contact us at:

Email: info@cureangelman.org.au

Phone: 1300 0788108

Address: PO Box 689 Bungalow 4870