Shane is a registered builder in Western Australia and is the owner and managing director of Tydan Constructions, a Perth-based commercial construction company. Shane has an Associate Diploma in Architecture, Diploma of Builders Registration and is a member of the Australian Institute of Building and the Australian Institute of Company Directors. Shane serves as an adviser to the board of directors of the Conductive Education Charity of Western Australia (CECWA), a charity supporting making Conductive Education available to all children with complex and special needs.

Shane is married and has three children; his eldest daughter Aralie has Angelman syndrome.

Jeromie is an accomplished senior leader specialising in tax accounting with 16 plus years’ experience with combined experience in both the public sector and custodian industry sectors across multinational environments, he is a Certified Public Accountant with a Bachelor of Business Accounting and Economics and Finance and currently works as the Vice President and Head of Tax Australia at State Street. Jeromie has experience in strategy development, quality assurance and governance. Jeromie has four children; his eldest daughter, Jayda, has Angelman syndrome.

Kristy brings over 15 years of experience in the Defence Base and Estate Management sector, specializing in integrated facility and asset management. She has managed Defence base redevelopments and upgrades, with expertise spanning estate upkeep, finance, Defence fuel infrastructure, and project delivery. Kristy takes pride in developing roles, processes, and procedures to streamline operations for greater efficiency and effectiveness.

Kristy and her husband Troy run a small business and are parents to four daughters, including Indie, their second youngest, who lives with Angelman syndrome.

Chloe teaches marine science at a field studies centre in southern Tasmania. Chloe has a Bachelor of Science, a Bachelor of Education, Graduate Certificate in Science Education and a Graduate Certificate in Digital Technology. She has previously worked in environmental science, STEM and education of students with disabilities. Chloe has a particular interest in genetics and neurology and has been with FAST AU since 2009.

Chloe and her husband have three children; the oldest has Angelman syndrome.

Tomis a Senior Legal Counsel with over a decade of experience. Tom works for a leading NSW electrical utility company, specialising in distribution network operations and energy sector growth projects. Tom has extensive experience in construction, infrastructure and energy law, including managing complex transactions, delivering projects and resolving major disputes. I assist the business with day-to-day activities, ensuring legal risk management, governance and compliance. I work closely with cross-functional teams to drive successful project delivery.

Tomis a proud father to his son, Jude, who lives with Angelman syndrome.

Boris is a specialist anaesthetist at St. George Hospital in Sydney and has over 10 years experience in medical research including clinical trials. He is passionate about ensuring Australia remains an attractive trial location for potential Angelman Syndrome therapeutics and that Australia has all the infrastructure in place to ensure therapies and can be evaluated and implemented as quickly as possible. Most importantly, he is a father to Leo, who lives with Angelman Syndrome. Leo's joy and curiosity motivates his work every day.

Paediatric Neurology Fellow at Perth Children’s Hospital. Honourary Fellow, UQ Centre for Clinical Research, Faculty of Medicine and Biomedical Sciences, The University of Queensland.

PhD in neuropharmacology and a track record in neurobiology research, including over 35 published papers and numerous grants, including a National Health and Medical Research Council fellowship, and Project Grant as co-Chief Investigator.

Randal has a long standing interest in developmental neurobiology.

Associate Professor, Medical Director of Child Development at the Queensland Children’s Hospital.

Specialties: Developmental and behavioural paediatrician with dual qualification in sleep medicine.

Interests: behavioural phenotypes, genetics, sleep and child development.

Chief Scientist at Genomic Diagnostics, leading a team providing NATA-accredited germline, somatic and reproductive genomic assays.

Specialties: Diagnostic pathology and genomics, relationship to phenotype and neuronal function.

Interests: Improving patient care through translation and integration of genomic techniques into the clinical diagnostic laboratory.