Shane is a registered builder in Western Australia and is the owner and managing director of Tydan Constructions, a Perth-based commercial construction company. Shane has an Associate Diploma in Architecture, Diploma of Builders Registration and is a member of the Australian Institute of Building and the Australian Institute of Company Directors. Shane serves as an adviser to the board of directors of the Conductive Education Charity of Western Australia (CECWA), a charity supporting making Conductive Education available to all children with complex and special needs.

Shane is married and has three children; his eldest daughter Aralie has Angelman syndrome.

Jeromie is an accomplished senior leader specialising in tax accounting with 16 plus years’ experience with combined experience in both the public sector and custodian industry sectors across multinational environments, he is a Certified Public Accountant with a Bachelor of Business Accounting and Economics and Finance and currently works as the Vice President and Head of Tax Australia at State Street. Jeromie has experience in strategy development, quality assurance and governance. Jeromie has four children; his eldest daughter, Jayda, has Angelman syndrome.

Sally has 20 years’ experience in accounting,  working in both the public and private sectors. She brings her experience working as both a company and a financial accountant. Sally has a Bachelor of Commerce, majoring in accounting, and is a member of the institute of chartered accountants.  Sally currently manages a consultancy focusing on individual, company, trust and self-managed super funds.

Sally has three children; her daughter Analise has Angelman syndrome.

Chloe teaches marine science at a field studies centre in southern Tasmania. Chloe has a Bachelor of Science, a Bachelor of Education, Graduate Certificate in Science Education and a Graduate Certificate in Digital Technology. She has previously worked in environmental science, STEM and education of students with disabilities. Chloe has a particular interest in genetics and neurology and has been with FAST AU since 2009.

Chloe and her husband have three children; the oldest has Angelman syndrome.

Emma is an experienced Senior Human Resources and Industrial Relations professional in the Queensland Government sector, and has worked in areas including TAFE, Education, Training, Employment and Justice. Emma holds a Bachelor of Business (Human Resources / Management) and additional qualifications in Results Coaching as well as areas of interest in health and wellbeing, including mental health. Emma has operated a small employment services business and also runs an electrical business with her husband Ryan on the Sunshine Coast.
Emma has two daughters; her youngest daughter Blair lived with Angelman Syndrome.

Christoph is an experienced leader in the pharmaceutical industry, with significant expertise in finance, administration, and business management. Christoph holds postgraduate and Honours degrees in Business Administration and International Business from United Kingdom and German universities. Christoph has worked for Boehringer Ingelheim since 2008 and currently holds dual roles as head of Finance and Head of Animal Health for Australia and New Zealand.

Christoph and his wife moved to Australia in 2017, they have three boys; his youngest son, Domininc has Angelman syndrome.

Anna is a Clinical Trial Operations Manager with the NHMRC Clinical Trial Centre at the University of Sydney.  Anna has a BSc in Pharmaceutical Science and has 12 years experience in clinical trials in both industry and academic research, ranging from early Phase I through to Phase II and III studies. Anna loves the meaningful work in academic research which often leads to changes in clinical practice.  Anna lived in Australia from 2009-2023 and has now returned to her homeland of Ireland. Anna is still an active board member and serves as the EU representative for the Global Angelman Syndrome Registry.  Anna and her husband have two daughters, their youngest Roisin lives with Angelman Syndrome.

Felicity works as a staff specialist pediatrician at The Canberra Hospital and is currently director of paediatric education. Her specialties are general paediatrics,  including neurodevelopmental disorders, clinical genetics, infant health and child protection. She is actively involved in medical student and RACP trainee supervision, teaching and examinations. Felicity’s combination of medical knowledge and experience as a parent contributes positively to directing priorities in Angelman syndrome research.

Felicity and her husband have three boys; her middle child, Sebastian, has Angelman syndrome.