For families touched by Angelman syndrome, the community can be a lifeline. The Angelman family will support you in difficult times and celebrate your hard-earned wins. We share a common vision, that soon there can be a cure for all ages. Share to help raise awareness on the importance of community. International Angelman Day is celebrated annually on February 15.

Diagnosis day brings a flood of questions. Have no fear. You are now part of our FAST family: a network of parents, researchers, clinicians, and other professionals who are committed to Cure Angelman Now. Here you will find a supportive community, answers to each of your questions, and a wealth of resources to help you manage your child’s daily needs. Please click on the button for the steps to take as a newly diagnosed parent.

The 15q Clinical Research Network is a comprehensive clinical network system. Each clinic has its own unique expertise and specialized care available. Individuals with Angelman syndrome will have access to a variety of professionals, including, but not limited to:

  • Clinical geneticist
  • Neurologist
  • Psychiatrist
  • Psychologist
  • Speech Language Pathologist
  • Physical/Occupational Therapist
  • Genetic counselor
  • Social worker
  • Nutritionist

For more information, or to find a clinic, please visit 

The Global Angelman Syndrome Registry is a project designed to empower individuals diagnosed with Angelman syndrome, their families and those working towards research and treatments.

Parents and caregivers can drive data collection by contributing to the largest dataset on Angelman syndrome by entering details of their loved one/s diagnosis, medical history, development, and more in a series of online modules. The Global Angelman Syndrome Registry is a tool for understanding developmental progress, medication, and seizure management, but more importantly, it provides an invaluable resource to advance the search for therapeutics. We ask that you complete the registration and update it annually as a part of moving us toward meaningful treatments.

Our journey to diagnosis begins much like many other stories in the Angelman community. Colin, our first born, arrived at 38 weeks after an uneventful pregnancy. He was long, lean, and had a headful of beautiful blond hair. We were discharged from the hospital and eager to settle in as a new family of 3.