For Families
Let’s face it - no one expects to be here.
Angelman Syndrome (AS) is rare but you’re not alone.
Receiving a diagnosis of AS often raises more questions than it answers.
Why did this happen? What does this mean for my child? Will they reach milestones?
What support is available?
Access care-navigation
Angelman syndrome (AS) can affect many areas like seizures, sleep, movement and behaviour.
Our nurse-led program, asNavigators, helps connect you with the people who understand AS.
Join the community
A closed Facebook page for Australian parents only where stories are shared, questions are answers and milestones are celebrated.
Advance research
Join global research by adding your child’s information to the Global Angelman Syndrome Registry, sharing your real-life experiences to improve understanding and support future treatments.
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