Dr. Heussler is the investigator running our NEPTUNE trial in Brisbane. Emily Milburn is the study coordinator and can walk you through the process of participation in detail and how to potentially move forward with enrollment.
Further information can be found here.
Contact information is:
Queensland Children’s Hospital
The Melbourne site is active. Their process is also evolving with COVID-19 disruptions, so important to be in close contact with the study coordinator at that site. The investigator running NEPTUNE in Melbourne is Dr. Ingrid Scheffer. They are potentially opening for onsite visits soon pending restrictions lifting. The process is evolving and safety of families in the Angelman community is always the highest priority for the team at Ovid. Those interested in possible participation at the Melbourne should contact the study coordinator on Dr Scheffer’s team, Paul Lightfoot.
Paul can help guide families interested in learning more. His info is: