FAST Australia is run by an all volunteer staff and board who dedicate their time and expertise to finding a cure for Angelman syndrome. Our goal is to bring practical treatment into current medical practice as quickly as possible.
Meagan Cross – Chairperson
Meagan Cross has a background in information science and operates a geographic information science consultancy with experience in data development, management, programming, analysis and presentation. Meagan also runs a business in Far North Queensland with her husband, Rohan, and a small charity in her home town of Cairns that hosts an annual fun run and walk to raise awareness for Rare Disease Day. Meagan serves on the board of directors of FAST United States and is a member of Rare Voices Australia.
Meagan has two daughters; her youngest daughter Molly, has Angelman syndrome.
Shane Jez – Secretary/Deputy Chairperson
Shane is a registered builder in Western Australia and is the owner and managing director of Tydan Constructions, a Perth-based commercial construction company. Shane has an Associate Diploma in Architecture, Diploma of Builders Registration and is a member of the Australian Institute of Building and the Australian Institute of Company Directors. Shane serves as an adviser to the board of directors of the Conductive Education Charity of Western Australia (CECWA), a charity supporting making Conductive Education available to all children with complex and special needs.
Shane is married and has three children; his eldest daughter Aralie has Angelman syndrome.
Sally Asfour – Treasurer
Sally has 20 years’ experience in accounting, working in both the public and private sectors. She brings her experience working as both a company and a financial accountant. Sally has a Bachelor of Commerce, majoring in accounting, and is a member of the institute of chartered accountants. Sally currently manages a consultancy focusing on individual, company, trust and self-managed super funds.
Sally has three children; her daughter Analise has Angelman syndrome.
Nicole Pusic – Fundraising Manager
Nicole brings over 20 years of media, not-for-profit and corporate experience that includes events, marketing and executive management. Her experience includes involvement within the fundraising sector, having worked as the executive events manager for the Australian industry’s peak body, the Fundraising Institute of Australia. Nicole’s experience and skills will help grow the Foundation’s reach and exposure for years to come.
Nicole has two children; her youngest, Cleo, has Angelman syndrome.
Chloe Simons – Chief Science Officer
Chloe works for the Department of Education Tasmania’s Professional Learning Institute in the fields of Science and Digital Technology. She also works teaching children with disabilities. Chloe has a Bachelor of Science, a Bachelor of Education, Graduate Certificate in Science Education and is currently completing a Graduate Certificate in Digital Technology from the University of Tasmania. She has a particular interest in genetics and neurology and is passionate about being part of the FAST team.
Chloe and her husband have three children; the oldest has Angelman syndrome.
Felicity works as a staff specialist pediatrician at The Canberra Hospital and is currently director of paediatric education. Her specialties are general paediatrics, including neurodevelopmental disorders, clinical genetics, infant health and child protection. She is actively involved in medical student and RACP trainee supervision, teaching and examinations. Felicity’s combination of medical knowledge and experience as a parent contributes positively to directing priorities in Angelman syndrome research.
Felicity and her husband have three boys; her middle child, Sebastian, has Angelman syndrome.
FAST Australia and the Australian Angelman community would also like to acknowledge the dedication and hard work of Jennifer Kyriacou in helping to establish the Foundation in Australia, and recognise the contribution of our founding board members Antony Vidray, Fiona Lawton and Joanne Davis as well as historical board members Joanne Caracoglia, Emma Price, Alana Mohr and Edward Backhouse.