Some links below to stories of Australian families raising awareness and/or fundraising for Angelman Syndrome. Each and every story is not only helping FAST reach our goals but also to generate community awareness for the individual with AS.

Diagnosis of Hope (Parramatta Advisor) 

An American medical researcher gave hope to parents of children with developmental disorders during a talk on his ground-breaking research at the Children’s Hospital at Westmead last week.

For parents such as Mary Lou Carter, whose son has Angelman syndrome, the news was heartening.

Happy Go Lucy - (City South News)

Life for little Lucy Kyriacou is tougher than it is for most two-year-olds but you wouldn’t guess it to look at her.

Since the diagnosis by a developmental pediatrician at the Mater Hospital, the Kyriacous have been on a journey of discovery.

Mrs Kyriacou and two other Brisbane mothers coordinated and funded a visit by leading US neuroscientist Dr Edwin Weeber, who presented sessions to both families living with the syndrome and members of the medical profession.

 

Living with the disease of Angels  (ABC Newcastle)-

Fifteen-year-old MacKenzie Feighan was diagnosed with Angelman Syndrome, a rare neuro-genetic disorder, five years ago.  

They told Helen MacKenzie's type of Angelman Syndrome is not as severe as most, as it doesn't affect all the cells in her body.*

*MacKenzie has a mosaicism Angelman Syndrome

 

 Montrose mum heads to US to fight for son (Lillydale Yarra Valley Leader) -

A MONTROSE mum is on her way to the United States as part of an effort to set up the first Angelman syndrome research foundation in Australia.

“The aim of this is twofold: one is to raise awareness about Angelman in Australia and to help support research,” Ms Davis said.

“The other reason is that we want to establish a foundation in Australia. Essentially it would be the Australian chapter of FAST, but all the money raised would stay here and support research here.”

 

Cairns dad to participate in Bridge to Brisbane run to raise funds for daughter's rare condition (Cairns Post) -

For little Molly Cross, the basics of life don't come easy. Diagnosed with the extremely rare Angelman syndrome, Molly requires constant therapy to achieve the family’s hope she will walk for the first time by the end of the year.

Mr Cross is hopeful research into a cure, including the possibility of human trials in the US next year, could soon benefit Molly.

 

Hero powered by love

"The last three or four kilometres were hard, the thought of my neice Molly kept me going" - Miles for Smiles runner Brendan Smith after his first Half Marathon. Read more here...

Child of Courage nomination

Ms Benfell has nominated her daughter, Shae for a Child of Courage Medal in this year's Pride of Australia awards. "She's very inspirational and very resilient." Read more here...


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